This will be short but sweet, its late and we need to be up early tomorrow (DH starts his PhD so will be dropping me off at the hospital before he starts at 8 . )
Today has been nothing but positive news, we are a little worried about getting to excited as it seems for every good day there is another bad. BUT for the moment she is doing really well, her hemoglobin levels have stabilized so a blood transfusion is looking unlikely now. Her urine is a lovely sunshine yellow (and yes i kept looking at the bag of urine today with a smile on my face, bet that will never happen again in my lifetime lol )
The EEG results look normal and if appears the immune/blood cells issue is “sorting itself out” - they think it was a reaction to the medication she was on. They have stopped some stuff and played around with amounts and so far she is seeming happy with it.
We are not out of the woods but for the moment she is doing great and on the mend. She was taken of the vec (the paralyzing drug) again and was interacting with us today. She can answer some basic yes/no questions and there is nothing better than holding her hand and having her squeeze back.
I let alot of stuff get to me yesterday. The ICU Rebecca is in is a horrible place to be, its not like the one she was in as a newborn (it was a smaller room with 4 other beds all newborns and preemies) . This is a big room (at least 20 babies/toddlers i would say) and these kids are all seriously ill. Alot like us in away as not so long ago there child seemed healthy and happy and then out of the blue it all went wrong.
Yesterday i found out one of the babies had died the night before, just that day i had been talking to his family. Another one of the babies whose family we will talk to had taken a big step back in her recovery (she was finally taken of the ventilator and able to breath by herself before stopping to breath again) . Everywhere you turn there is a family grieving, mothers crying over there children and it just brings the cold ,hard facts to light. Loss of a child is a much to common things in those walls and i was terrified my daughter would become one of them.
Today im much more optimistic, with the good news and getting to see /interact with her again . Also seen another little girl moved from the ICU to a ward (while her mother cried with happiness behind her) made me realize that success stories are much more likely here. Rebecca is in the best possible place she could be , she is just making sure that everyone is kept busy and noone forgets about her.
Been waiting all day for that great news, all the Family are praying for her, Love you Laura(okay you too Craig)XXXXXXXXXXXXXXX
Laura, I am SO glad Rebecca is making some improvements! What a blessing and I am so happy for you. You & your family are going through an incredibly stressful time and you have every right to need to let some of it out. It’s scary and tough to deal with, but you are SO very strong and are doing a great job in being there with your little princess. Take care! Love, Tracey
LAURA! I have the biggest smile across my face. I am SO glad to hear some good news. yay. I hope and pray it continues. But we all know Rebecca is a strong little lady, and she will pull through with shining colors.
It must be hard to be surrounded by so much illness, tho, and see some of the stories ending in tragedy. Wow.
I’m so happy to hear this, what wonderful news. I’m sorry that it has been up and down for y’all, but I have faith that God will do what is right and make Rebecca better. Take care of you when you can. I will be praying for your family and the families you have talked with as they are going through own ups and downs as well. Hugs!
YEAH! Our little fighter. I cannot wait for the day to read about YOU walking behind Rebecca and crying because she is well enough to move out of the ICU. I hope (and know!) it is coming soon!
Laura, that’s fantastic news. I think it would be hard not to be in a place like that and get down and start thinking lots of things. I can just imagine you smiling at the urine bag and smiling, LOL. It’s amazing the things we appreciate as a parent or are no longer bothered by. I’m so glad your girl squeezed your hand and I hope it won’t be long before she’s home and snuggled up with you. *hugs* Hang in there! You’re doing great.
Im so happy to hear some good news! I hope tomorrow is another great day.
[...] with their eldest daughter, Rebecca, it pales in comparison. I was *so* happy to hear positive news in her blog today. And I’m relieved to hear that Chas over at Sugar and Ice is feeling *much* better now, too, [...]
Yay….i am so happy that you finally got some good news…i hope it continues to flow and i will continue to pray.
Still praying for Rebecca and your family. That must be so hard, to be there and see your little girl suffering, and to have to see so many other little babies struggling just as hard. I am going to say a fierce prayer tonight just for Rebecca and ask that she comes through just fine. It breaks my heart to hear of kids suffering.
Shaneka
So pleased to hear Rebecca’s doing so well! Hope it carries on this way and you have your lil girl back home with you soon!
((hugs))
That’s so wonderful that she’s doing better! Will continue keeping you in our thoughts and prayers.
I am SO happy things are looking brighter today!
So glad things are finally looking up!!
Love you and Glad to hear from you, take care XXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXX
Add A Comment