Back Again

With another short update, got back home tonight not long before 9pm . Still needed dinner and took a bath – not to mention get Eilidh to bed, although that took minutes as she was already in comfortable sleeping clothes (as my family were coming to the hospital to visit Rebecca and it was later, she was fed and bathed before hand. Meant just keeping her awake on the ride there and she could sleep on the way home ) .

Basically im exchasted and going to curl up in front of the tv in the living room and hopefully get some sleep.

Rebecca is doing well, she has now been moved from the ICU to a ward which is lovely . She was allowed to eat and drink today for the first time and she loved both, although while she was 3/4 of the way through a banana she was loving they said she was not allowed anymore. Would not even let her finished it . They said as when she took a drink she chocked so wanted to wait till tomorrow (would not listen to us, she did choke but only in a i have not drank anything in weeks and this tastes great , gulp it down much to fast type way) . Anyways hopefully she can start again tomorrow.
As for homecoming we are still unsure, next Wednesday at the earliest but from what the surgeon said the other day more likely a week on Wednesday. Hoping it will not be that long and we can convince him otherwise, even if it means bringing her in for check ups.

The biggest issue the past few days have been the drugs, she was heavily sedated while on the ventilator . On some pretty big time drugs including Morphine . Now her poor system has to be weaned of them .
Yesterday was hellish for us all. For lack of better words our 3 year old daughter spent the day “stoned” . Im not laughing here and find nothing funny in it at all. She spent most of the day rolling and jittering around in her bed (ever seen someone on speed or maybe ecstasy? Looked similar to that) . Hands were always going for something and she was obviously hallucinating.
In the afternoon she started taken these horrible fits – lashing out with incredible violence determined to hurt herself, us and anyone or anything around her. She would be screaming and nothing could calm her, you would hold her and she would be hitting, scratching, biting and if left alone attacking herself. She scared everyone (including herself i think) .
Lack of sleep was a major issue , she was up for around 7am on the Tuesday morning. Awake till she went for surgery around 10 – was a quick anesthetic so was only out for around an hour. Next time she slept after that was 5pm on the Wednesday. Yes as in over 24 hours later, and even then that was only for 10 minutes. After a bucket load of drugs in the evening (8 syringes full) she finally fell asleep around 9-ish and slept solidly for 12 hours . Not even moving of needing cuddles during the night.
They had to increase her drug intake and come up with a new weaning plan, gradually getting her off everything . Today was a very good day and she happy and much more Rebecca like (although not 100%, she would have wee moments when she was definetly seeing stuff and got jittery) .
Her body is weak and she is unsteady and still unable to walk (she won’t even really try as she has an iv still in her foot) , her coordination is completely off and even sitting up can be to much for her.

She is on the mend though and at least now i get to hug her and talk with her, she was very loving today and we got plenty of hugs and kisses. I felt we were finally reunited with her again.

Before i go and turn in for the night, one weird thing is she has refused her dummy through -out all this to the point of getting upset if we mention it. No idea what its about but it would be handy if she decided to stay off it for good as we have been dreading taken it off her.